Panel Discussion: Which Patient-Reported Outcomes Should We Use in IPF Trials and Care to Ensure were Measuring What Matters to Patients
- Comparing commonly used IPF patient-reported outcome measures, including ERS-IPF, K-BILD, cough-specific instruments, and Living with IPF to understand their strengths, limitations, and clinical relevance
- Exploring why PRO use varies across trials, including regulatory expectations, endpoint selection, and differences in therapeutic mechanisms
- Discussing whether the field should move toward standardized PRO frameworks to better capture symptoms such as cough, breathlessness, fatigue, and overall quality of life