Sharon Lee
CEO Canadian Pulmonary Fibrosis Foundation
Sharon Lee is the Chief Executive Officer of the Canadian Pulmonary Fibrosis Foundation (CPFF), where she leads national efforts to improve the lives of Canadians living with pulmonary fibrosis through advocacy, research, and patient support. A Certified Fund Raising Executive (CFRE) with a Master’s in Philanthropy & Development, Sharon is a recognized leader in the nonprofit sector, known for driving strategic growth and fostering cross-sector collaboration. She works closely with patients, clinicians, researchers, and industry partners to advance equitable access to care and accelerate innovation. Passionate about amplifying patient voices, Sharon brings a unique perspective to the evolving pulmonary fibrosis landscape and is committed to shaping a future with better outcomes for all affected.
Seminars
This session will explore how patient organizations, philanthropic foundations, and non-traditional stakeholders are influencing the future of IPF, PPF, and ILD drug development, from translational research funding and biomarker development to trial design, regulatory engagement, and patient access.
- Explore how advocacy groups and research-focused foundations are shaping priorities across the IPF and PPF development landscape
- Discuss the growing role of philanthropic and non-profit organizations in funding translational research, biomarker development, and early-stage therapeutic innovation
- Examine opportunities to accelerate therapy development through collaboration across academia, foundations, biotech, pharma, and patient communities
- Identify practical approaches for building long-term partnerships that extend beyond recruitment into sustained scientific and strategic collaboration
- Assess how patient-informed initiatives are influencing endpoint development, earlier diagnosis strategies, and future treatment paradigms
