Sharon Lee
Chief Executive Officer Canadian Pulmonary Fibrosis Foundation
Sharon Lee is the Chief Executive Officer of the Canadian Pulmonary Fibrosis Foundation (CPFF), where she leads national efforts to improve the lives of Canadians living with pulmonary fibrosis through advocacy, research, and patient support. A Certified Fund Raising Executive (CFRE) with a Master’s in Philanthropy & Development, Sharon is a recognized leader in the nonprofit sector, known for driving strategic growth and fostering cross-sector collaboration. She works closely with patients, clinicians, researchers, and industry partners to advance equitable access to care and accelerate innovation. Passionate about amplifying patient voices, Sharon brings a unique perspective to the evolving pulmonary fibrosis landscape and is committed to shaping a future with better outcomes for all affected.
Seminars
This session will examine how patient advocacy organizations are shaping IPF, PPF, and ILD drug development across the full development lifecycle, with a focus on trial design, regulatory engagement, reimbursement considerations, and sustained patient involvement.
- Explore how patient advocacy groups influence clinical trial design, enrolment strategies, and the selection of meaningful endpoints in IPF, PPF, and ILD studies
- Understand the role of patient organizations in shaping regulatory discussions and supporting access considerations for novel therapies
- Identify practical approaches for pharma to build effective, long-term partnerships with patient groups that extend beyond recruitment into ongoing engagement and advocacy
